Journal Publications
2026
From dismissal to partnership: Patient experiences of recurrent urinary tract infection healthcare informed by the Theoretical Domains Framework and behaviour change theory
Newlands et al., Health Expectations, Volume 29, Issue 2, Page e70629
This qualitative study explored healthcare experiences of 26 people living with recurrent UTI in the UK, using reflexive thematic analysis mapped to the Theoretical Domains Framework and behaviour change theory. The research identified four key barriers to quality recurrent UTI healthcare, and four facilitators. This paper provides crucial insights into patient-clinician interactions from the patient perspective, and provides theoretically driven recommendations for service improvements and enhanced patient-centred care. Such recommendations include demonstration of the benefits of employing the RUTISS and the RUTIIQ in clinical practice.
The Recurrent Urinary Tract Infection Symptom Scale: Responsiveness to antibiotic treatment and the minimal clinically important difference
Newlands et al., Urology
Building on the previously validated Recurrent UTI Symptom Scale (RUTISS), this study examined the measure's responsiveness to antibiotic treatment and established the minimal clinically important difference (MCID) of 6.5 points through triangulation of anchor-based and distribution-based methods. The research demonstrates that the RUTISS is sensitive to changes in symptom severity following treatment, providing clinicians and researchers with critical scoring interpretation guidelines. This enables standardised monitoring of treatment response and supports evidence-based clinical decision-making in recurrent UTI management.
2024
Evaluating the quality of life impact of recurrent urinary tract infection: Validation and refinement of the Recurrent UTI Impact Questionnaire (RUTIIQ)
Newlands et al., Neurourology and Urodynamics, Volume 43, Issue 4, Pages 902–14
This study confirmed the validity and psychometric properties of the new patient-reported outcome measure (PROM) for assessing the psychosocial impact of recurrent UTI: the Recurrent UTI Impact Questionnaire (RUTIIQ). Refinements were implemented to optimize the RUTIIQ from a statistical perspective and to reduce respondent burden, resulting in an 18-item questionnaire.
Confirmatory structural validation and refinement of the Recurrent Urinary Tract Infection Symptom Scale (RUTISS)
Newlands et al., BJUI Compass, Volume 54, Issue 2, Pages 240–52
Aimed at establishing the validity of the new symptom- and pain-focused patient-reported outcome measure (PROM) for recurrent UTI, the Recurrent UTI Symptom Scale (RUTISS), this study confirmed a 15-item questionnaire with strong statistical properties.
2023
Psychosocial burden and healthcare disillusionment in recurrent UTI: A large-scale international survey of patient perspectives
Maxwell et al., Frontiers in Urology, Volume 3
This qualitative study explored the experiences of 1,983 people living with recurrent UTI, identifying two major themes: (1) the patient burden of recurrent UTI, which describes the multifaceted biopsychosocial impact of this condition, and (2) healthcare disillusionment, which describes patient dissatisfaction with healthcare received. The findings highlight the urgent need to address the patient perspective and incorporate enhanced patient-centered care within recurrent UTI management and healthcare.
Development and psychometric validation of a patient-reported outcome measure of recurrent urinary tract infection impact: The Recurrent UTI Impact Questionnaire
Newlands et al., Quality of Life Research, Volume 32, Pages 1745–58
The Recurrent UTI Impact Questionnaire (RUTIIQ) is a novel patient-reported outcome measure (PROM) for the evaluation of recurrent UTI psychosocial impact and burden, exploring five key quality of life domains. This article details the first four stages of PROM development and validation, including concept elicitation, expert clinician screening, and cognitive interviews and pilot testing with people living with recurrent UTI.
The Recurrent Urinary Tract Infection Symptom Scale: Development and validation of a patient‐reported outcome measure
Newlands et al., BJUI Compass, Volume 4, Issue 3, Pages 285–97
The first patient-reported outcome measure (PROM) specifically targeted at assessing symptom and pain severity in recurrent UTI, the Recurrent UTI Symptom Scale (RUTISS) was developed using a gold-standard, FDA-approved methodology. This paper reports on each stage of the questionnaire’s initial development and validation, including concept elicitation, expert clinician screening, and cognitive interviews and pilot testing with people living with recurrent UTI.
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